Autoimmune Update: 11 Months and a Pic This Time (It Ain’t Pretty)!

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Well, I’m fresh off of my first visit to Doc in more than 10 weeks.

If you’ve followed this blog, you know about the October/November body implosion that took place. You also know that once I got off of a certain supplement, most things subsided. (If this is news to you, you can catch up by reading this and this.)

I’m not sure if I just imagineered it, but I swear that Doc seemed a little thrown, maybe, when I walked in. (It’s entirely possible–he’s the only person in this world, other than my Scott, who sees me without makeup and wigs and I admittedly look very odd right now, half an eyebrow on the left, none on the right, a few sparse strands of snow-white hair on the noggin.)

I rehashed all the weird things that happened, as well as what cleared up almost immediately (as in, within days or a couple of weeks) once I went off the supplement, what I’m taking now, how much. I also filled him in on my new Barre3 love (LUV!), how well I’m eating, how great I’m feeling. Really, the hair thing is a bummer (big bummer), but that’s pretty much the extent of it now. Not to say that I’m not self-conscious about it anymore (and I’d certainly love to have it back and will keep trying), but I’m not consumed by it. And when I look at all the other positives in my life since starting to go to Doc, I’d be a dope if my feelings weren’t totally tipped in favor of gratitude. My body feels great, my brain is clear, my work is busy and growing in directions that I love, my relationships are sweet and solid, my friendships are fun. I have much to be happy about, hair or no.

But, because it’s the most visible outcome of my autoimmune issues (alopecia ophiasis, universalis, totalis, areata, whatever else, I’ve had it all, along with gluten issues, digestive impairments, adrenal glitches and loads more), whether or not my hair comes back will always be what most people use to judge the success of this bodily experiment.

Fair enough. But I can tell you this: If aches or pains or poops or lack thereof are bringing you down, get to Doc or someone like him, and commit. It’s so far beyond worth it that there really aren’t words. I haven’t been sick all year. I haven’t had any back pain. All of my rashes and boils and other flare-ups are gone, as are joint aches and pains. I’m pretty much always in a good mood. I sleep incredibly well. I could write pages and pages of things that are physically and emotionally better.

And the results of all that? Here’s one thing that improved and I’m certain it’s because of how I’m feeling: My business grew last year. A lot. And I know it’s because I actually had the energy to put into it and to focus, all the time. And it was fun, too. What could be better? I have even bigger goals this year and I intend to accomplish them, and then some. (Actually, I had no goals last year because at this time last year, I felt like crap. My body was breaking down, my happiness was going with it and I had very low expectations for anything good.)

But, back to Doc. He thinks that the suspected supplement (or, at least, the doubled dosage of it, and possibly in cahoots with another supplement), may have led to a depletion of Vitamin B3, which caused some sort of disruption in the way my body was synthesizing (building, eliminating, rotating, whatever) collagen. So, we continued my self-imposed scaling back of several supplements, along with the addition of a low dosage of niacinamide for a month. I think he’d eventually like to work up to getting me back on the evil supplement, too, but at the lower, original dose (since it was a couple months after starting that when we both felt the tiny peach fuzz).

My next appointment is Valentine’s Day, which puts me at just over one year with Doc, and exactly 21 years to the day of the accident that whacked all this into play.

As for the pic, I’ve mentioned before that I have a tiny bit of hair on the head. Tiny. But still, those suckers grow from time to time and so, from time to time, I have to trim them. It takes all of two seconds. (If you’re wondering why I don’t just shave my head entirely, it’s because this tiny bit of hair helps anchor wigs on those occasions when I can’t or don’t wear hats with my wigs, like to some black-tie functions, but it’s not something I like to do daily.)

The last time I trimmed my hair, back in October (as the implosion was underway but not fully formed), I saved the cuttings. My thinking was that I could see if the pile gradually grew (indicating that my hair was getting thicker, fuller), in the opposite way that it shrunk over time as I lost more and more hair. Kind of brilliant, yes? And here I am, showing you my hair, without actually having to show you me and my hair. Voila!

So, with all of my hair trimmings piled up on the face of dimes, on the left is the October trim. On the right is from today, January 18. This is everything I’ve got, all in one place. And, sadly, even that tiny bit is vastly diminished. (When I told Doc about the litany of issues I had, I mentioned that it seemed to me that my hair had stopped growing for a while, and now, the proof).

Not much to look at, but it’s not the end of the story, just eleven months in. And I’m feeling optimistic about the next year or so or, at least, trying pretty darn hard to be.

Cheers, thanks for reading, stay tuned!

{Note:┬áThese are┬ámy own experiences with applied kinesiology, which clearly aren’t meant as medical advice for anyone else. But I know a lot of friends and family members are grappling with a huge variety of autoimmune issues and other ailments, so I’m happy to share my experiences. And if this is your first visit and you’d like to follow chronologically, click here. Otherwise, enjoy!}

One comment

  1. For some reason I don’t see a pic. I have had a lot of probs with supplements. Tried the tumeric and broke out in severe hives after about a week. I am a follower who knows how gorgeous you are. Here’s to always trying and to new beginnings in 2018!


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